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Understanding long-term outcomes of allogeneic (cells from a donor) blood or marrow transplant (BMT) compared to standard therapies in children with sickle cell disease (SCD) (WeDecide)

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31 Locations

NCT06941389

Clinical Trial Goal

To understand how different treatments affect long‑term health and quality of life in children with SCD

You may be able to join this trial if you:

Your child:
  • Is 3 - 20 years old 
  • Has SCD
  • Is one of the following:
    • Eligible for BMT with a fully matched family member as their donor
    • Currently getting treatment for SCD
  • You agree to have other standard tests done to see if your child can be in the clinical trial 

Trial Details

This is not a treatment trial. Your child will continue receiving the care their doctors recommend. 

This trial observes and compares outcomes between 2 groups: 
Group 1 - Allogeneic BMT using a matched related donor
Group 2 - Non-transplant treatment

Clinical trial doctors will be monitoring:
  • Cognitive functions, like attention and memory
  • Family impact
  • Hospital and emergency visits
  • Pain events
  • Quality of life
  • SCD-specific symptoms

Your child will be monitored for up to 3 years. 

Contacts

John Horan, MD, MPH, 5852742345, John_Horan@URMC.Rochester.edu

Savannah Pangrazio, BS, 5852750932, Savannah_Pangrazio@URMC.Rochester.edu

Locations

Children's of Alabama (NT-DMT)NOT_YET_RECRUITING

Birmingham, Alabama
Jeanine Dumas, (205) 638-9100, jdumas@uabmc.edu

Children's of Alabama (MRD-HCT)RECRUITING

Birmingham, Alabama
Jana Hilburn, (205) 6389324, jiqal@uabmc.edu

Nemours Children's Hospital, Delaware (MRD-HCT)RECRUITING

Wilmington, Delaware
Megan Petrick, (302) 651-5584, Megan.Petrick@nemours.org

Children's National Hospital (MRD-HCT)RECRUITING

Washington D.C., District of Columbia
Julia Malloy, 2024764225, JMALLOY@childrensnational.org

Children's Healthcare of Atlanta (MRD-HCT)RECRUITING

Atlanta, Georgia
Judith Talib, 4047854075, judith.talib@choa.org

Comer Children's Hospital (MRD-HCT)RECRUITING

Chicago, Illinois
Christopher Omahen, 7737028137, comahen@bsd.uchicago.edu

Riley's Children Hospital (NT-DMT)NOT_YET_RECRUITING

Indianapolis, Indiana
Jillian Bouck, (317) 944-5000, jrbouck@iu.edu

Riley Children's Hospital (MRD-HCT)RECRUITING

Indianapolis, Indiana
Courtney Spiegel, 3172783105, clorch@iu.edu

Boston Children's Hospital (NT-DMT)NOT_YET_RECRUITING

Boston, Massachusetts
Nadia Tarhini, 617-355-6000, Nadia.Tarhini@childrens.harvard.edu

Boston Children's Hospital (MRD-HCT)RECRUITING

Boston, Massachusetts
Lydia L Osuagwu, 617-355-6000, Lydial_Osuagwu@dfci.harvard.edu

Wahington Univ in St Louis (NT-DMT)NOT_YET_RECRUITING

St Louis, Missouri
Bethany Kellogg, (314) 935-5000, bethany.kellogg@wustl.edu

Washington University in St Louis (MRD-HCT)NOT_YET_RECRUITING

St Louis, Missouri
Ian Snyder, 314-273-5953, ian.s@wustl.edu

Hackensack University Hospital (MRD-HCT)RECRUITING

Hackensack, New Jersey
Elana Smilow, (551) 996-5673, elana.smilow@hmhn.org

Children's Hospital at Montefiore (MRD HCT)NOT_YET_RECRUITING

The Bronx, New York
Elaine Chung, 7187412396, elchung@montefiore.org

Cohen's Children Hospital (NT-DMT)NOT_YET_RECRUITING

Queens, New York
Ferdausi Shifath, (833) 462-6436, fshifath@northwell.edu

Columbia Presbytarian (NT-DMT)NOT_YET_RECRUITING

New York, New York
Nikhil Punwani, (212) 305-5437, np2927@cumc.columbia.edu

University of Rochester (MRD-HCT)NOT_YET_RECRUITING

Rochester, New York
Savannah Pangrazio, 585-275-0932, Savannah_Pangrazio@URMC.Rochester.edu

University of Rochester (NT-DMT)NOT_YET_RECRUITING

Rochester, New York
Savannah Pangrazio, 585-275-0932, Savannah_Pangrazio@URMC.Rochester.edu

Children's Hospital at Montefiore (NT-DMT)RECRUITING

The Bronx, New York
Karen Ireland, (718) 741-2426, KIRELAND@montefiore.org

Roswell Park (MRD-HCT)RECRUITING

Buffalo, New York
Stephanie Guilford, 716-845-1300, stephanie.guilford@roswellpark.org

UNC Children's Hospital (MRD HCT)NOT_YET_RECRUITING

Chapel Hill, North Carolina
Juanita Cufee, 919-966-1178, juanita_cuffee@med.unc.edu

UNC Children's Hospital (NT-DMT)NOT_YET_RECRUITING

Chapel Hill, North Carolina
Lindsey Akpuogu, (919) 962-2211, lakpuog@email.unc.edu

Atrium Health (MRD-HCT)RECRUITING

Charlotte, North Carolina
Marithza Amaya, 9804422309, Marithza.Amaya@atriumhealth.org

Nationwide Children's Hospital (NT-DMT)NOT_YET_RECRUITING

Columbus, Ohio
Anthony Villela, (614) 722-2000, anthony.villella@nationwidechildrens.org

Oklahoma Children's Hospital (MRD-HCT)NOT_YET_RECRUITING

Oklahoma City, Oklahoma
Christina Gonzalez, (405) 271-4412, Christina-Gonzalez@ouhsc.edu

Children's Hospital of Philadelphia (MRD-HCT)RECRUITING

Philadelphia, Pennsylvania
Peter Nicholas, 2674269376, nicholasp@chop.edu

St Jude Children Hospital (NT-DMT)NOT_YET_RECRUITING

Memphis, Tennessee
Jason Hodges, 866 278-5833, Jason.Hodges@STJUDE.ORG

St. Jude Children's Research Hospital (MRD-HCT)RECRUITING

Memphis, Tennessee
Stacy High, 9012336555, stacy.high@stjude.org

Texas Children's Hopsital (NT-DMT)NOT_YET_RECRUITING

Houston, Texas
Daniela Westerhold, (832) 824-1000, diwester@texaschildrens.org

UT San Antonio (NT-DMT)NOT_YET_RECRUITING

San Antonio, Texas
Sophia Isabel Salinas, 210-358-4000, salinass9@uthscsa.edu

Texas Children's Hospital (MRD-HCT)RECRUITING

Houston, Texas
Helton D. Cruz Rivas, 832-824-1798, hdcruz@texaschildrens.org

ClinicalTrials.gov record

NCT06941389. First posted on 4/23/25

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