In this study, researchers sent Be The Match care guides to more than 600 patients and caregivers, and asked if the guides were helpful. The guides were available as 8-page printed brochures, online, and as mobile apps.
More than 90% of patients and caregivers strongly agreed or agreed that the care guides helped them understand recommended tests at check-up appointments. And 85% preferred printed guides rather than an online version or mobile app.
What’s in the guides?
The care guides list usual wellness checks and other reminders related to BMT, including:
- After BMT, you may need all your vaccinations repeated.
- Depending on the medications you took to prepare for BMT, you may need bone density tests.
- Graft-versus-host disease (GVHD) is a common side effect of some types of transplant that can affect eyes, skin, and other organs. It’s important to be on the lookout for signs and symptoms. If GVHD is caught early, you may have more treatment options, and those treatments may work better.
- Information and resources around emotional health, quality of life after transplant, relationships, and finances.